Publications

Enhancing Understanding and Reducing the Stigma of Major Mental Health Conditions

The report delves into personal experiences of people experiencing MHCs, including schizophrenia, bipolar disorder, post-traumatic stress disorder (PTSD), and eating disorders. It offers insights into how stigma plays out in everyday life and is deeply rooted in society. 

Promoting Better Treatment And Advocacy For People Experiencing Severe Migraine And Mental Health Issues

In this report, we highlight the economic and social costs of comorbid migraine and mental health and continue to share the experiences of people with this comorbid condition as in our previous report. In collaboration with the European Headache and
Migraine Alliance, GAMIAN-Europe convened a workshop of seven people with lived experience of this comorbidity. A small survey with 13 experts was also carried out to explore what key messages were important for the general public to know.

Addressing suicidality in older people across Europe

The issue of suicidality among older adults is complex and urgent. Older people face unique challenges, particularly regarding mental health, loneliness, and socioeconomic difficulties. This increases their risk of suicide, requiring targeted interventions to improve mental well-being. This policy reported takes an in-depth looking into the recent trends of suicidality in older people and also at the role that welfare policies and the healthcare system play. The lived experience perspective is also involved via focus group and survey results. It concludes with policy recommendations at both national and European level.

EMPOWER & CONNECT A Toolkit for Managing Co-Occurring Cancer and Depression Across Europe

This toolkit is aming at shine a light on the significance prevalence of depression among cancer patients compared to the general population This resource is designed to support patients, caregivers, and healthcare professionals by offering practical guidance and strategies to manage the dual challenges of cancer and depression. We invite you to explore this toolkit, which aims to enhance understanding, provide support, and foster connections, making a positive difference in the lives of those affected by these co-occurring conditions.

Migraines and mental health in women: addressing the challenge

This report comes out of a collaboration between GAMIAN-Europe and the European Migraine and Headache Alliance (EMHA). It seeks primarily to raise awareness of the comorbidity between women affected by severe migraine attacks and a mental health condition; an area relatively underexplored in research and policy despite its high occurrence.

Exploring mental health and suicidality in LGBTQIA+ people: a toolkit

This toolkit is meant as a resource for everyone. Whether you identify as LGBTQIA+ or are an ally looking to learn more about the specific issues within, you can hopefullyfind some answers here.

 

 

European local initiatives promoting mentally healthy communities

This short interactive PDF document gives different examples of impactful local mental health initiatives around different European countries. It was created for European Mental Health Week 2023 with the purpose of sharing some of the wonderful initiatives that different communities are enacting around the continent.

Developing trust and effective care for people with schizophrenia

This report presents the findings of a two-year project developed by GAMIAN-Europe and the European Psychiatric Association focused on enhancing the therapeutic relationships between patients with schizophrenia and their psychiatrists.

Top Tips for Supporting your Brain Health

Brain health is a critical part of our overall health. It underlies our ability to communicate,
make decisions, problem-solve and live a productive and useful life. The brain processes around 70,000 thoughts per day and it is, not surprisingly, interlinked to our mental health and well-being.

This guide offers top tips for supporting your brain health and is focused on: Sleep and Relaxation, Mental Fitness and Social Interaction.

A report on cancer & depression

This report presents the findings of two workshops and a survey carried out by GAMIAN-Europe, in collaboration with the European Cancer Patient Coalition, on depression as a cancer co-morbidity. You will find testimonials from patients with depression and cancer, clinicians and carers; as well as recommendations for mental health and generalist healthcare services and governments.

Things about Suicide that Young men must know

Sometimes life can make you feel lost, overwhelmed, incredibly down and even suicidal. But remember, while there is life there is hope. This interactive toolkit is meant as a safe space to help you or anyone you know find the resources you need when you’ve hit your lowest point.  You are not alone and remember when things get tough:

“Soak up the views. Take in the bad weather and the good weather. You are not the storm.”

Matt Haig

Are Mental Health Needs Being Met by Treatment Services? COVID-19 Survey II Report

In collaboration with the European Psychiatric Association, GAMIAN-Europe created a second survey reaching out to members of both organisations and to the general public for their experiences during the past 12 to 18 months. We asked patients and clinicians about their mental health, access to and delivery of mental health services, whether treatment needs are being met and the challenges and pressures to delivering services.

Finding and achieving quality of life beyond a mental health condition

This booklet includes top tips for those who experience a mental health condition to help improve their quality of life and think about their sense of belonging and place in society.

It is based on two discussion workshops with people with lived experience of a mental health condition, and carers. The learning from those experiences and what people with a mental health condition found most useful are captured in a list of ten top tips at the end of the booklet.

The impact of COVID-19 on pre-existing mental health patients

This survey provides an important contribution to many of the existing and ongoing surveys to specifically see how the pandemic has affected people with mental health problems from a pan-European perspective. In understanding the consequences of the pandemic on this group we can ensure people receive the right support at the right time for their mental and physical health, in a way that is appropriate for them in meeting their needs.

The little book of big conversations (Breaking Depression)

Open and honest conversations about depression are an important step towards ensuring that people get the support they need. However, we understand that starting these conversations can be daunting and knowing where to begin can be difficult.

That’s why we have collaborated with Janssen and EUFAMI to develop The Little Book of Big Conversations, as part of the Breaking Depression project. This digital book is full of small pieces of practical advice to help make those big conversations about depression a little bit easier.

Schizophrenia Companion Guide II – Perspective of People with Schizophrenia and their Carers

This guide is a follow on from the first Schizophrenia Companion Guide produced by GAMIAN-Europe in 2016 which provides a comprehensive overview of schizophrenia, including symptoms and treatment.Even though there is some overlap with the first guide, the current guide includes more personal experiences of people diagnosed with schizophrenia, carers, friends and family; their discoveries and the strategies they used as part of their journey.

Developing trust and effective care for people with depression

The project represents an important joint partnership between GAMIANEurope and the European Psychiatric Association (EPA) and a way to strengthen this through joint working to improve the therapeutic relationship between patients and psychiatrists. The aim was to explore the patient-clinician relationship in a pilot project from the perspective of both the patient and their psychiatrist as individuals; and to explore their ‘paired’ experience in relation to developing trust, shared decision making regarding treatment, and positive and negative experiences of their meetings. 

A Pocket Guide to Agitation and What to Do in a Crisis

This pocket guide is for people who experience agitation, their carers and close friends. This brief guide compliments the full version which can be accessed via GAMIAN-Europe and EUFAMI websites.
It provides key information on how to recognise the early signs and symptoms of agitation and what to do if a crisis occurs.
There is a crisis card at the end of this guide that can be used to provide emergency contact details and preferences for treatment and care during an episode of agitation.
The pocket guide is available here in English, French, German, Italian, and Spanish.

A guide to depression and its treatment

This booklet has been developed specifically for people suffering from depression. It has been co-created by people suffering from depression or who have suffered from depression who are members of GAMIAN-Europe (an umbrella group involving patient organizations in different European countries) and by Servier.

Take care and be kind to yourself

This booklet has been developed specifically for and with people living with depression. It has been co-created by people suffering from depression or who have suffered from depression and who are members of GAMIAN-Europe (an umbrella group involving patient organizations in different European countries) and by Servier. Quotes shared in this booklet by the patients reflect their own experiences and do not necessarily reflect medical and scientific evidence or practice. All names attributed to quotes have been changed to maintain confidentiality.

A sustainable approach to depression: moving from words to actions

People living with a diagnosis of schizophrenia are often disadvantaged, vulnerable and experience high levels of stigma and discrimination. It can affect the way a person thinks, feels and perceives the world. It is important to ensure that the rights and expectations of people living with schizophrenia are maintained and upheld; now an urgent priority. The purpose of this Charter is to define the rights, expectations and responsibilities for mental health care and treatment from the persons’ perspective.

Mental Health GAMIAN-Europe

Call To Action

Empowering people affected by mental ill health is beneficial to individuals and their carers. It is also crucial for developing more patient centered, efficient and cost-effective health systems.
This is the key message of this comprehensive Call to Action launched by GAMIAN-Europe.
The Call, developed with the direct input from a variety of leading EU-level and national (mental) health stakeholders, addresses what can be undertaken concretely to overcome the current pervasive disempowering attitudes and behaviours towards people affected by mental ill health.

A sustainable approach to depression: moving from words to actions

This report aims to identify key factors that will ensure programmes for depression are sustainable and have a lasting impact on people affected. Drawing from the practical experience of 19 case studies and the published literature, we have identified ten lessons learnt that may help policymakers build a sustainable response to depression in years to come.

Mental Health GAMIAN-Europe

Breaking the silence: Sexual health impact on mental well-being

This report gives an overview on the descriptive statistics (frequencies, percentages) about the respondents’ background characteristics, mental health / treatment and sexual health. Besides, we perform some crosstab analyses in order to analyse the relationships between the background characteristics and sexual health on the one hand and mental health / treatment and sexual health on the other side.

Schizophrenia Companion Guide

No two people with schizophrenia are the same. Every individual is different. Every experience is different. The effects of schizophrenia are also felt by caregivers, friends and family members. Each person affected by schizophrenia will have their own story to tell and their own journey to travel. There may be times when this journey is difficult, but it is a road that many have travelled before. Equally, there is no right way or wrong way to live with schizophrenia but, by learning from the experiences of others, it is possible to prepare for what lies ahead and overcome obstacles along the way. We have developed this booklet through consultation with people with schizophrenia, their caregivers and family members, and healthcare professionals, with the aim of offering practical guidance for people affected by schizophrenia. It will be up to you to steer your own course, but we hope this companion guide will help you find your way.

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