The Value of Early Intervention in Brain, Mind and Pain Conditions
Meeting of the MEP Interest Group on Brain, Mind and Pain, and the Interest Group on Mental Health, Well-being and Brain Disorders – in partnership with the European Brain Council.
The Interest Group meeting took place on Wednesday 12th July 2017 at the European Parliament. It was a good opportunity to discuss brain disorders with stakeholders and members of the European Parliament.
The first panel discussion was chaired by GAMIAN-Europe former Executive Director Paul Arteel. He introduced the panelists: Prof. Maura Pugliatti, Prof. Alistair Webb, Ms. Joke Jaarsma and EUFAMI Secretary General Ms. Aagje Leven.
MEP Michael Boni, Marek Plura, Jana Žitňanská and Nessa Childers actively participated during the debates.
A full report will be published soon.
AGENDA
July 12th 2017
12.30-15.00
European Parliament, Room A5 E-2
Buffet lunch
Host MEPs: Jana Žitňanská / Marian Harkin / Michał Boni / Marek Plura
12.30 Welcome: Jana Žitňanská MEP / Marek Plura MEP
Roundtable/Panel 1
THE VALUE OF TREATMENT STUDY: THE FINDINGS
Chair: Paul Arteel, GAMIAN-Europe
Aim: This session will address the conclusions and recommendations from the European Brain Council’s Value of Treatment research project and White Paper. It will explore the value of early intervention, using case-studies in four disorders – presented from various stakeholder perspectives – and will discuss how the EU can support the solutions identified.
Opening addresses:
Frédéric Destrébecq, Executive Director, European Brain Council
Michal Boni, MEP
Panel:
MULTIPLE SCLEROSIS : A neurologist’s perspective – Prof. Maura Pugliatti, Italy
STROKE: An economist’s perspective – Prof. Alistair Webb, UK
RESTLESS LEGS SYNDROME: A patient’s perspective – Ms. Joke Jaarsma, Netherlands
SCHIZOPHRENIA: A family member’s perspective – Ms. Aagje Ieven, Belgium
Conclusions: Jana Žitňanská
Roundtable/Panel 2
NEXT STEPS: TOWARDS A VALUE PROPOSITION
Chair: Ann Little, European Federation of Neurological Associations, President
Aim: This presentation and panel discussion will explore possible next steps in the Value of Treatment project – exploring the application of the developed methodology to other disease areas e.g. rare diseases or chronic pain, as well as a future focus on interventions such as rehabilitation.
Opening address, Panel 2: Michael Boni MEP – Towards Integrated Care
Introduction to the Value Proposition
Ms. Vinciane Quoidbach, Public Health & Policy, Research Project Manager
Value of Treatment Research Project
Panel: UNMET NEEDS
RARE DISEASES (ATAXIA): A neurologist’s perspective – Prof. Paola Giunti, UK
MYALGIC ENCEPHALOMYELITIS: A patient perspective – Nancy van Hoylandt, Belgium
CHRONIC PAIN: A researcher’s perspective – University of Rotterdam TBC
Guest speaker Stephane Hogan, Head of Neuroscience, DG Research
14.30 Conclusions incl. audience Q&A and remarks from supporting MEPs
14.45 Drinks
To Download the AGENDA please click here
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