‘Digital Capacity Building of Mental Health Organisations’
GAMIAN-Europe Annual Convention & General Assembly
22 –24 September 2017
From Friday 22 to Sunday 24 September, some 40 representatives from patient organisations, GAMIAN-Europe board members and other stakeholders travelled across Europe to the GAMIAN-Europe Annual Convention in Budapest, hosted by the Awakenings Foundation.
During workshops and keynote speeches, the participants discussed and shared learnings and opinions on ‘Digital Capacity Building of Mental Health Organisations’. Patient organisations, currently focusing mostly on websites, newsletters and Facebook, are struggling to take their digital communication to the next level, hindered by a lack of human and financial resources. To solve this, training should be provided to allow members to develop their digital expertise, and inter-organisation communication should be increased to extend the reach of dissemination. Most importantly, when communicating to patients and public, it is crucial to translate the (scientific) content to a language that everyone can understand.
With the support of:
- Day 1 - Friday, 22 September 2017
- Day 2 - Saturday, 23 September 2017
- Day 3 - Sunday, 24 September 2017
Arrival of Board Members and participants with networking coffee
15.00 – 16.30: Patient Advisory Board
16.30 – 18.30: Board Meeting
19.30 – 21.00: Dinner and European Personality Award presented by Hilkka Kärkkäinen, President of GAMIAN-Europe
07.30 – 08.45: Delegate’s breakfast
Badge pickup & workshop registration
Chaired by Raluca Nica, Vice President of GAMIAN-Europe
09.00 – 09.05: Welcome by Hilkka Kärkkäinen, President of GAMIAN-Europe
09.05 – 09.15: Introduction by Dee O’Sullivan, Managing Director of myhealthapps.net (Patient View)
09.15 – 09.40: Digital communication: how do mental health organisations fare in comparison to other health organisations?
- Presentation of Patient View benchmark report
- Focus on a few Best Practice cases
09.40 – 10.10: Overview of GAMIAN-Europe’s digital capabilities and recommendations introduced by Aikaterina Nomidou, Secretary General of GAMIAN-Europe
- Overview of the results of the survey on digital capabilities
- Three things your organisation with digital means to support fundraising (how much it costs and how long it takes)
- Three things your organisation can do to support digital advocacy and communication (and how much it costs)
- What is GAMIAN-Europe’s plan in digital communication and support to members?
- What are the upcoming projects and campaigns that members can join?
10.10 – 10.30: Coffee break
10.30 – 11.30: Workshop
- Workshop 1: What are the needs of GAMIAN-Europe members to start up digital platforms? What support would the members need from GAMIAN-Europe?
- Workshop 2:What are the three recommendations in the digital space GAMIAN-Europe can provide to support World Mental Health Day?
- Workshop 3:How can we use technology to support fundraising?
11.30 – 12.00: Presentation of the workshop’s outcomes by facilitators
12.00 – 13.30: Lunch Break
Chaired by Robert Kristof, Board Member of GAMIAN-Europe
Key speaker: Nicola Bedlington, Secretary General of European Patients’ Forum (EPF)
14.00 – 14.20: What role can patient organisations play to improve access to health care (EUPATI perspective) and what is the role of patient organisations in European Medicines Agency (EMA) and Health Technology Assessment (HTA)?
14.20– 14.40: Perspective from GAMIAN-Europe: our role in the European Medicines Agency (EMA). Why it is important? What do we get out of it ? Speakers: István Gallai and Dániel Merey, Members of the Awakenings Foundation
14.40 – 15.00: Discussion and Q&A from participants
15.00 – 15.10: Closing of the Session by Dr. Matt Muijen, Board Member of GAMIAN-Europe
15.10 – 15.40: Coffee break
15.40 – 17.40: General Assembly chaired by Dolores Gauci, Board Member of GAMIAN-Europe
17.40 – 18.10: Best Practice discussion: Presentation of Best Practice applications from member organisation that applied for the GAMIAN-Europe Pedro Montellano Good Practices Award 2017
19.30 – 21.30: Dinner and presentation of the Pedro Montellano Good Practice Award at the Academy Club, Budapest
Visit the Headquarters of Awakenings Foundation and discussion on Mental Health in Hungary and neighbouring countries – Venue: Awakenings Foundation
07.00 – 09.00: Delegate’s breakfast and check out at the Park Inn by Radisson Hotel
09.30 – 09.45: Departure- Bus transfer arranged by GAMIAN-Europe
09.45 – 10.00: Arrival of participants at the Awakenings Foundation HQs
10.15 – 10.30: Welcome by Patients and the Head doctors
10.30 – 11.00: Meeting patients and Staff, visit of the premises incl. the Art Studio
11.00 – 11.20: Presentation by Andrea Bodrogi, Chief Addictologist
11.20 – 11.40: Presentation by Judit Harangozó, Head of the Foundation, Chief Psychiatrist
11.40 – 12.00: Discussion
12.00 – 14.00: Informal buffet lunch, networking and departure of participants