2017 Convention – BUDAPEST

‘Digital Capacity Building of Mental Health Organisations’

GAMIAN-Europe Annual Convention & General Assembly

22 –24 September 2017

From Friday 22 to Sunday 24 September, some 40 representatives from patient organisations, GAMIAN-Europe board members and other stakeholders travelled across Europe to the GAMIAN-Europe Annual Convention in Budapest, hosted by the Awakenings Foundation.

During workshops and keynote speeches, the participants discussed and shared learnings and opinions on ‘Digital Capacity Building of Mental Health Organisations’. Patient organisations, currently focusing mostly on websites, newsletters and Facebook, are struggling to take their digital communication to the next level, hindered by a lack of human and financial resources. To solve this, training should be provided to allow members to develop their digital expertise, and inter-organisation communication should be increased to extend the reach of dissemination. Most importantly, when communicating to patients and public, it is crucial to translate the (scientific) content to a language that everyone can understand.

With the support of:



Arrival of Board Members and participants with networking coffee

15.00 – 16.30: Patient Advisory Board

16.30 – 18.30: Board Meeting

19.30 – 21.00: Dinner and European Personality Award presented by Hilkka Kärkkäinen, President of GAMIAN-Europe

07.30 – 08.45: Delegate’s breakfast

First Session

Badge pickup & workshop registration

Chaired by Raluca Nica, Vice President of GAMIAN-Europe

09.00 – 09.05: Welcome by Hilkka Kärkkäinen, President of GAMIAN-Europe

09.05 – 09.15: Introduction by Dee O’Sullivan, Managing Director of myhealthapps.net (Patient View)

09.15 – 09.40: Digital communication: how do mental health organisations fare in comparison to other health organisations?

  • Presentation of Patient View benchmark report
  • Focus on a few Best Practice cases

 09.40 – 10.10: Overview of GAMIAN-Europe’s digital capabilities and recommendations introduced by Aikaterina Nomidou, Secretary General of GAMIAN-Europe

  • Overview of the results of the survey on digital capabilities
  • Three things your organisation with digital means to support fundraising (how much it costs and how long it takes)
  • Three things your organisation can do to support digital advocacy and communication (and how much it costs)
  • What is GAMIAN-Europe’s plan in digital communication and support to members?
  • What are the upcoming projects and campaigns that members can join?

10.10 – 10.30: Coffee break

10.30 – 11.30: Workshop

  • Workshop 1: What are the needs of GAMIAN-Europe members to start up digital platforms? What support would the members need from GAMIAN-Europe?
  • Workshop 2:What are the three recommendations in the digital space GAMIAN-Europe can provide to support World Mental Health Day?
  • Workshop 3:How can we use technology to support fundraising?

11.30 – 12.00: Presentation of the workshop’s outcomes by facilitators

12.00 – 13.30: Lunch Break

Second Session

Chaired by Robert Kristof, Board Member of GAMIAN-Europe

Key speaker: Nicola Bedlington, Secretary General of European Patients’ Forum (EPF)

14.00 – 14.20: What role can patient organisations play to improve access to health care (EUPATI perspective) and what is the role of patient organisations in European Medicines Agency (EMA) and Health Technology Assessment (HTA)?

14.20– 14.40: Perspective from GAMIAN-Europe: our role in the European Medicines Agency (EMA). Why it is important? What do we get out of it ? Speakers: István Gallai and Dániel Merey, Members of the Awakenings Foundation

14.40 – 15.00: Discussion and Q&A from participants

15.00 – 15.10: Closing of the Session by Dr. Matt Muijen, Board Member of GAMIAN-Europe

15.10 – 15.40: Coffee break

15.40 – 17.40: General Assembly chaired by Dolores Gauci, Board Member of GAMIAN-Europe

17.40 – 18.10: Best Practice discussion: Presentation of Best Practice applications from member organisation that applied for the GAMIAN-Europe Pedro Montellano Good Practices Award 2017

19.30 – 21.30: Dinner and presentation of the Pedro Montellano Good Practice Award at the Academy Club, Budapest

Visit the Headquarters of Awakenings Foundation and discussion on Mental Health in Hungary and neighbouring countries – Venue: Awakenings Foundation 

07.00 – 09.00: Delegate’s breakfast and check out at the Park Inn by Radisson Hotel

09.30 – 09.45: Departure- Bus transfer arranged by GAMIAN-Europe

09.45 – 10.00: Arrival of participants at the Awakenings Foundation HQs

10.15 – 10.30: Welcome by Patients and the Head doctors

10.30 – 11.00: Meeting patients and Staff, visit of the premises incl. the Art Studio

11.00 – 11.20: Presentation by Andrea Bodrogi, Chief Addictologist

11.20 – 11.40: Presentation by Judit Harangozó, Head of the Foundation, Chief Psychiatrist

11.40 – 12.00: Discussion

12.00 – 14.00: Informal buffet lunch, networking and departure of participants


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