Tackling Stigma of Brain, Mind and Pain Disorder

Meeting of the Interest group on Mental Health, Wellbeing and Brain Disorders in partnership with the interest group  on Brain Mind and Pain


12.00hrs Arrivals and Registration

[Note: Please assemble in the foyer of the ASP Building before 12.00hrs to be escorted to the meeting room, where a sandwich lunch will be available]

12:15 hrs:  Networking Lunch

Chairperson: Ann Little, President, European Federation of Neurological Associations

13.00hrs Opening Address: Marian Harkin, MEP and Interest Groups’ co-chair

13.10hrs OUR PERSONAL EXPERIENCE OF STIGMA What stigma means to me and my family: What should be done?

  • THE PATIENT: Liisa Mikkonen, Vice-president PAE, Person affected by chronic pain
  • THE PARENT: Andrea Bilbow, OBE, Parent children affected by ADHD
  • THE CHILD: Emily Benson, Daughter of person affected by Dystonia

13.40hrs THE EVIDENCE OF STIGMA Prevalence & impact of stigma in the wider patient community: What can we do?

  • BRAIN: EFNA Patient Experience Survey, Prof. Matilde Leonardi, Neurologist, Besta National Neurological Institute
  • MIND: GAMIAN-Europe Pan-European Stigma Survey – Paul Arteel, Executive Director, GAMIAN-Europe
  • PAIN:Patient Pain Pathway Recommendations – Joop van Griensven, President, Pain Alliance Europe

14.10hrs Keynote Address: Jürgen Scheftlein, DG-Santé

14.20hrs Presentation of Interest Group Dzaft Workplan to Tackle Stigma of Neurological and Pain Disorders – with comments from MEP co-chairs and the audience.

15.00hrs CLOSE

full report: click here