Tackling the Stigma attached to Brain, Mind and Pain Disorders

Meeting of the Interest Group on Mental Health, Well-being and Brain Disorders in partnership with the MEP Interest Group on the Brain Mind and Pain


12.00hrs Arrivals and Registration

[Note: Please assemble in the foyer of the ASP Building before 12.00hrs to be escorted to the meeting room, where a sandwich lunch will be available]

12:15 hrs:  Networking Lunch

Chairperson: Ann Little, President, European Federation of Neurological Associations

13.00hrs Opening Address: Marian Harkin, MEP and Interest Groups’ co-chair

13.10hrs OUR PERSONAL EXPERIENCE OF STIGMA What stigma means to me and my family: What should be done?

  • THE PATIENT: Liisa Mikkonen, Vice-president PAE, Person affected by chronic pain
  • THE PARENT: Andrea Bilbow, OBE, Parent children affected by ADHD
  • THE CHILD: Emily Benson, Daughter of person affected by Dystonia

13.40hrs THE EVIDENCE OF STIGMA Prevalence & impact of stigma in the wider patient community: What can we do?

  • BRAIN: EFNA Patient Experience Survey, Prof. Matilde Leonardi, Neurologist, Besta National Neurological Institute
  • MIND: GAMIAN-Europe Pan-European Stigma Survey – Paul Arteel, Executive Director, GAMIAN-Europe
  • PAIN:Patient Pain Pathway Recommendations – Joop van Griensven, President, Pain Alliance Europe

14.10hrs Keynote Address: Jürgen Scheftlein, DG-Santé

14.20hrs Presentation of Interest Group Dzaft Workplan to Tackle Stigma of Neurological and Pain Disorders – with comments from MEP co-chairs and the audience.

15.00hrs CLOSE

full report: click here



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